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Gainesville woman deals with diagnosis
Samantha DeLong discovers she has Marfan Sydrome after major surgery
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In the summer of 2012, Samantha DeLong spent two months in the hospital one of which she was in a coma. Two doctors at Northeast Georgia Medical Center were finally able to diagnose her with a connective tissue disorder called Marfan Syndrome.
Samantha DeLong has been known to approach the particularly tall people she meets. The 23-year-old Gainesville woman is able to recognize the tell-tale appearance of other people who likely have Marfan Syndrome, a genetic disorder that is typically linked to tall, lanky people. Since learning about the disease more than a year ago, DeLong is eager to share her experience, which started with a pain in her back.